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The Municipality of Puerto Lumbreras requests the creation of a Technical Committee on Socio-Sanitary RD (13/04/2013)

The council has approved a motion with the Municipal Council requested the Governing Council of the Region of Murcia is created a Technical Committee on rare diseases to improve the health and social care and to provide a comprehensive system of care for people suffering from these diseases.

The Municipality of Puerto Lumbreras, through the Municipal Council, unanimously approved a motion for the creation of a technical commission social care in rare diseases, which are represented associations of patients suffering from rare diseases and their families and relevant institutions and social-health professionals.

Specifically, the session requests the Governing Council of the Region of Murcia the creation of the Technical Commission on rare diseases, with the goal of improving the health and social care and to provide a comprehensive system of care and a continuum of care to people affected by these diseases.

In this sense, the Councillor for Health and Social Policy, Maria Angeles Tunisia, explained that "it is necessary to raise awareness of these rare diseases. Therefore be encouraged new research on rare diseases, and to work towards the prevention and early detection. "

In addition, stressed that "the European Commission estimates that there are between 5,000 and 8,000 rare diseases, affecting approximately 7% of the world population, or about 500 million people. Accordingly, since the institutions should provide special support this group of patients and their families "

Finally, note that on 25 November the Council of Ministers unanimously approved the designation of 2013 as the Year Spanish for Rare Diseases, following the request made by the Ministry of Health, Social Services and Equality.

Source: Ayuntamiento de Puerto Lumbreras

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